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 NSF Registry - NSF Support Group Info 
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NSF Registry Background

The NSF Registry was formed by Dr. Shawn Cowper to gather and organize information concerning NSF from patients worldwide. According to the NSF Registry at Yale University (New Haven, CT), the NSF Registry maintains records on over 215 patients with NSF. Of these 215 NSF patients, more than 95% of all NSF patients surveyed have been exposed to a gadolinium within 2-3 months prior to the onset of symptoms of NSF with a majority of those on dialysis. Further, a number of patients with impaired renal function have been reported to the NSF registry.

CALL 1-800-883-9858 FOR NSF TESTING INFO

Goals of NSF Registry

NSF Registry identifies factors that may relate to or cause NSF. Accordingly, the NSF Registry collects medical data, treatment methods and results of several hundred NSF patients in order to evaluate the current NSF treatment options and hopefully find new and even more effective NSF treatment medications, therapies and strategies in the future.

Contact Information for the NSF Registry

Contacting the NSF Registry by e-mail is the preferred method at: registerm@juno.com

Telephone: (203) 785-3524
Fax: (203) 785-6869

Per the instructions on their website, patients should not send any medical information, tissue samples or slides to the NSF Registry unless directed to do so by Dr. Cowper or Carol Hribko at the NSF Registry.

Mailing Address: (to send microscope slides)

Carol Hribko
Yale Dermatopathology Service

PO Box 208059
15 York Street, LMP 5031
New Haven, CT. 06520-8059

NSF Legal Help- Talk to a NSF Lawyer

If you have been diagnosed with NSF or NFD - Talk to a NSF Lawyer about your legal rights. It is very important that you understand the current NSF lawsuits that have been filed, filing deadlines and other important information about NSF and NFD. Our law firm currently has over 200+ gadolinium contrast MRI clients being tested and 12 confirmed with NSF. We understand NSF and how to protect your legal rights. Talk to a Board Certified Personal Injury Trial Lawyer certified by the Texas Board of Legal Specialization since 1988.

CLICK HERE: NSF TESTING INFORMATION AVAILABLE

NSF Legal Help - Talk to a NSF Attorney

Free NSF Case Evaluation - Call Toll Free 1-800-883-9858

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